.


 

 

Living with MS

Hello everyone thank you for your time, 

Long time it has been for some you hope all is well.  Just to let you know if donít already that I was diagnose with MS a year ago. First words out of my Mom mouth was o shoot.  It was surprise to me as well but learning to deal with everyday like so many more ahead me do each day. My MS doctor, I call her  real name, is Joyce E. Mauk, M.D. www.swedish.org  close to the Steven Hospital (now Swedish Medical Center, Edmond) area which only 4 blocks from my home in Edmonds. Along with all my other doctors which really is nice. Figure been dealing with this MS since turning the age of 40 now 45. I do take a daily shot of Copaxone www.copaxone.com which has slow down the problem of MS getting worst but no cure. I too have slow down a bit myself balance is all over the road at times. I do have a disability for parking which in times is a blessing if I remember to use it. For walking for me long distance is a major issue.  Get tied when doing too much at home or work just learn to slow down & take break to recharge. I just keep on moving some days worst than others it could be worst. I work a 40 plus hour week which insurance for Copaxone is a must for a 30 day supply cost is well over $3,000 which my work insurance picks up Amen to that. April 3rd is my diagnose day which is seem like just yesterday times sure moves along. Thanks to Donna who been a life saver giving great support as well as the family & friends. As the shock has worn off do my best to keep on moving along. The Northwest is known for a lot of MS cases they tell me not sure why that is. Could be all the rain we get or the air we breathe just donít know working on it. whyhere.org Have the best team of doctors working day to day soon to master a cure for this disease that effects so many lives. Reason for everything they say which is so true. Hey bore you enough for one day with my day to day issues let me know how youíre doing? Doing wonderful so donít worry about me. walkwas.nationalmssociety.org Ė MS walk taking place this weekend all over help out if you can.

 

Thank you

 

See you down the road and leave you with a chorus from a song that comes to mind To live like you were dyin'. By Tim Mcgraw here the rest of it below my daily pray if not youíre missing the boat.


Good day! Don

 

GOD OUR FATHER,  

WALK THROUGH MY HOUSE   

AND TAKE AWAY ALL MY WORRIES AND ILLNESSES;   

AND PLEASE WATCH OVER AND HEAL MY FAMILY   

IN JESUS ' NAME.. AMEN  

 

Verse 1
He said I was in my early forties, with a lot of life before me
And one moment came that stopped me on a dime
I spent most of the next days, looking at the x-rays
Talking bout' the options and talking bout' sweet times.
I asked him when it sank in, that this might really be the real end
How's it hit 'cha when you get that kind of news?
Man what did ya do?
He said

Chorus
I went skydiving
I went rocky mountain climbing
I went two point seven seconds on a bull named Fu Man Chu
And I loved deeper
And I spoke sweeter
And I gave forgiveness I'd been denyin'
And he said some day I hope you get the chance
To live like you were dyin'

Verse 2
He said I was finally the husband, that most the time I wasn't
And I became a friend, a friend would like to have
And all of a sudden goin' fishin, wasn't such an imposition
And I went three times that year I lost my dad
Well I finally read the good book, and I took a good long hard look
At what I'd do if I could do it all again
And then

Chorus
I went skydiving
I went rocky mountain climbing
I went two point seven seconds on a bull named Fu Man Shu
And I loved deeper
And I spoke sweeter
And I gave forgiveness I'd been denyin'
And he said some day I hope you get the chance
To live like you were dyin'

Bridge
Like tomorrow was the end
And ya got eternity to think about what to do with it
What should you do with it
What can I do with it
What would I do with it

Skydiving
I went rocky mountain climbing
I went two point seven seconds on a bull named Fu Man Chu
And man I loved deeper
And I spoke sweeter
And I watched an eagle as it was flyin'
And he said some day I hope you get the chance
To live like you were dyin'

 

 


Send mail to joycekernek@windstream.net with questions or comments about this web site.
Copyright © 2004 - 2011 Joyce Loomis-Kernek
Last modified: January 05, 2014
Webmaster